Founded in 2011, Brayden Alexander Global Foundation for Hydranencephaly, Inc. dba Global Hydranencephaly Foundation (GHF) is a registered 501c3 nonprofit organization ensuring the preservation of human rights for those who have been diagnosed with this rare neurological condition. We achieve this by providing individualized family support, a network of resources, medical and/or educational advocacy services, and end-of-life/post-life support to families across the globe that are facing diagnosis of hydranencephaly for an individual in their care. Through the building of tenacious care provider advocates along with coordination of varied awareness efforts, we are working to shine a beacon on the possibilities that exist for these persons, despite the medically subjected odds stacked against them with a counterfactual prognosis.
Our network of more than 600 lives lived and living with hydranencephaly, all across the globe, gives us every reason to:
"Believe in the Impossible!"
GHF is 100% volunteer driven and funds raised are used solely in support of maintaining our mission to support our families across the globe. Your donation allows us to offer greater support in hard-to-reach demographical areas while growing our programs. Our biggest goal now is to have 3 paid staff members by the end of 2021, our 10th year of incorporation, in order to better meet the needs of the population we serve.